Effectiveness of Hemophilia Educational Program on Parents' Knowledge of Children with Hemophilia

Effectiveness of Hemophilia Educational Program on Parents' Knowledge of Children with Hemophilia

Hussein Ali Damad^1*, Wisam Mishaan Muttaleb²

1. MSc, College of Nursing, University of Baghdad, Iraq.
2. PhD, College of Nursing, University of Baghdad, Iraq. 
3.  

Corresponding author:Hussein Ali Damad

Email: hussein.ali1204a@conursing.uobaghdad.edu.iq

ORCID

Received: 25 June 2022, Accepted: 14 July 2022, Available online: 21 July 2022.

INTRODUCTION

Lack of consciousness regarding the importance of early treatment of bleeding episodes is a common barrier. Current World Federation of Hemophilia tips advocate the cure of an acute bleed inside two hours of its initiation. Parents, in turn, may additionally no longer desire to infuse an uncooperative child with clotting element until they deem it absolutely necessary. Parents have suggested feeling uneasy about injecting their child, a lack of confidence in their potential to raise out the injection correctly, and concern of causing damage or ache to their infant as predominant challenges in home-based care. In regard to larger responsibility, mother and father mentioned difficulty in identifying the proper structure of remedy for their child, anxiousness about illness of blood products, fear of the achievable longterm aspect consequences of prophylaxis, and a desire to avoid any unnecessary medications (Saxena, 2013).

It is clear from what has been noted above that mothers appreciably want a health care program to help their hemophilic young people to limit the complications and bleeding episodes as much as viable so that their teenagers can live close to everyday life.(Hussein, 2013). In Egypt, Consanguineous marriage consequently frequent, recessive attribute coagulation ailment attain a greater incidence than in many different countries. (Tonbary et al, 2010).

Serious lifelong health trouble and is an inherited X linked coagulation disorder brought about via deficiencies of the clotting factor VIII or of aspect IX. It can lead to persistent ailment and lifelong disabilities, if now not appropriate managed when you consider that early infancy. Caregivers are regularly confronted with a disturbing life and are exposed to exaggerated worries related with the illness of the children, as nicely as to different associated stressors (Widayanti, 2011).

Home treatment of hemophilia is currently the standard of care for patients with severe hemophilia. Home treatment increases the responsibility of the patients for their own treatment and care. Therefore, it is of utmost importance to attain a high level of knowledge and practical skills. The aim of our study was to investigate whether or not an educational e-learning program improves knowledge and skills of adult patients with hemophilia on home treatment (Mulders et al., 2012).

Home-based management involve self-care patient to prevent complications of SCD and it is the only management of SCD that does not require the use of a health care facility or health care practitioner. Even palliative care and comprehensive clinical care requires some form of self-care management by the patient. Compliance to self-care management resources continues to be a problem until now (Nolan, Nottage, Cole, Hankins, & Gurney, 2015).

The hemophilia nurse plays a major role in preparing the patient and parents/careers for home treatment as part of this, self-treatment initiation training and education are an integral part of the hemophilia nurse job. While the initiation of home treatment means more responsibility for the patient and career, close surveillance by hemophilia treatment centers (HTCs) is still very important. This also provides the opportunity to review the patient treatment diary and detect any medication problems. Hemophilia nurses may also play a part in the community, visiting patients in their home to help train them on effective treatment in the home (Mondorf et al., 2009). Thus, The aim of this study is to evaluate the effectiveness of hemophilia educational program on parents' knowledge of children with Hemophilia.

METHOD

Design:  quasi-experimental design with two groups (Study and control group) is carried out to evaluate the effectiveness of hemophilia educational program on parents' knowledge of children with Hemophilia.

Objective(s): The aim of this study is to evaluate the effectiveness of hemophilia educational program on parents' knowledge of children with Hemophilia.

Setting of Study: The data collection process lasted for three months been done at Blood Disease center in - AL Nasiriya City

Sampling: A non–probability (purposive) sample of (40) parents who their children have hemophilia and treated in Blood Disease center.

Data collection: the questionnaire format was used to collect the data which is contain two parts, first part about demographic characteristic (age, gender, social status, level of education, occupation), the second part about knowledge of parents’ informatiom regarding hemophilia children.

RESULTS

Table (1): Statistical Associations between the Demographic Variables of Study Sample and Effectiveness of an Educational Program on Parents knowledge for Children with Hemophilia :

S.O.V=Source of Variance F = Fisher test, d.f. = degree of freedom, P = probability value, , NS : Non Significant at  P ≥ 0.05  , S : Significant at P < 0.05.

               This table show their statistically significances differences between demographics variables (Parents age, gender, and educational level) and effectiveness of an educational program on parents’ knowledge for children with hemophilia, when analyzed by ANOVA.

Table (2): Comparison Significant Identify the Knowledge of Parents information for children with hemophilia of the Study Sample (Study Group):

          M.S. =Mean of score , S.D. = Standard,  Eval.= Evaluation. ,  Comparison, Significant , No.= Number of domain , NS : Non Significant at  P ≥ 0.05  , S : Significant at P < 0.05 , Level of Evaluation:(1-1.33) = Low ;( 1.34-1.67) = Moderate; ( 1.68-2.00) = High.

                 Table (2) shows that information of study sample were presented low level of knowledge at items (3.1.3,.4,1.6, 3.2.3, 3.2.4, 3.2.5, 3.3.1, 3.3.2, 3.3.3 , 3.3.4  and 3.4.1) at pre-test. While presents Moderate level of knowledge at items, So the results show high level of knowledge at post-test except (3.2.1, 3.2.2 and 3.2.5) were presented as moderate level of knowledge. That there are statistically significance differences between two periods ( pre and post-tests)  of  study sample in all items  of the Knowledge of Parents’ information for children with hemophilia of the Study Sample .This reflects  that the Parents knowledge was affected by educational program  when  analyzed  by (t-test).